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LOEWS HOLLYWOOD HOTEL, LOS ANGELES, CA ON JULY 28-31, 2016

3RD ANNUAL PATIENT & FAMILY EDUCATIONAL SYMPOSIUM

Seats Are Limited – Register Now!

Register now to reserve your spot. This convention is filling up fast. Remember, this is the only conference in the sickle cell community for those living with sickle cell, warriors, parents, teens, and understanding health care professionals. See you soon!

WHO WE ARE?

The Convention is hosted by Sickle Cell 101, Sickle Cell Warriors, Inc., and the   International Association of Sickle Cell Nurses and Physician Assistants (IASCNAPA). This is powered with multiple collaborative partnerships through the Sickle Cell Community Consortium (SCCC). With over 20 partner community-based and advocacy organizations, the Consortium is dedicated to educating, empowering, and advocating for the sickle cell community. Learn more about SCCC at www.sicklecellconsortium.org.

WHAT WE DO?

The Convention is the only conference in the sickle cell community that is solely focused on people living with sickle cell disease, their loved ones, caregivers, advocates, and caring health professionals. We have programs that focus on the entire lifespan of those with SCD, encouraging you to live, survive and THRIVE. We are not victims to be pitied, we are warriors, who collectively are in a fight for our very lives. Only someone who deals with sickle cell disease can understand what you are going through. So come join us, be celebrated, educated, and empowered.

WHY US?

If not us, who? If not now, when? The Convention is powered by the sickle cell community for the sickle cell community. Sickle cell disease has been discovered in modern medicine for over 100 years, and has yet to find a universal cure. There are over 100,000 people in the USA living with sickle cell, and millions all over the world. This is the only conference that focuses on the hours, days, weeks, and months between doctor’s visits. Sickle cell is something we deal with every minute our lives, and it is critically urgent that we connect with others who share our journey and walk in our shoes.

ABOUT CONVENTION

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Theme: Spirit Indestructible

Thursday is Registration and our welcome dinner. The full day dual-track symposium on Friday & Saturday develops coping strategies for every aspect of your life, including dealing with work, school, and relationships. We have special programs for teens, parents, couples, and adults living with sickle cell. Our roundtable panels, plenary sessions, and educational lunches all have been developed with your learning in mind.

On Saturday evening we will have a celebration/dance party for all participants, and an awards banquet that celebrates the nominees of the Sickle Cell  Community Service Awards; self-sacrificing people who support us in the fight against sickle cell disease. We will also introduce the 2016 Sickle Cell Warrior Prince & Princess, youth who exemplify living well with sickle cell. On Sunday morning we will have a prayer breakfast before half the assembly embarks on their journies. Later that afternoon, we will have an advocacy training course, to jumpstart those interested in community activism. These are just some of the many programs we have planned for the weekend.

Please feel free to share this website as well as the attached flyer with your community and networks. This program was designed by the sickle cell community for the sickle cell community, and is directly focused on supporting warriors (patients), and their families in the fight against sickle cell disease.

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PARTICIPANTS

64

TOPICS

22

SESSIONS

18

SPEAKERS

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WHO WE WANT

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Who comes to the Convention? Read on..

If you fit any of the following criteria, then you are the kind of person that we want at the annual Sickle Cell Patient & Family Educational Symposium. If you, anyone you love, anyone you care for, or anyone related to you;

  • has been diagnosed with sickle cell disease, sickle cell trait or sickle cell thalassemias

  • Needs a little inspiration, relaxing getaway, family time, friends vacation or just a break from the usual.

  • Has dreams, goals, aspirations for life, and is trying to make them happen, one way or another

  • lives anywhere on planet Earth and is not an alien from outer space

  • Is a hater or negative Nelly

  • Is a victim, throwing a pity party 24/7-365

LEARN MORE

Sickle Cell Warriors, DON’T MISS THIS AMAZING CONFERENCE!

SPEAKERS

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The 2016 speaker roster has been finalized and is available below. Check out the bios of some of our speakers.

This program has been lovingly crafted by the sickle cell advocacy community for our patients and families. The topics were selected after polls and votes were submitted through our various networks. No matter which program you choose, you will leave feeling educated, empowered, and inspired.

Dealing with sickle cell can often leave you feeling isolated and stressed. We are here to help you know that you aren’t alone on this journey. Check out our amazing speakers and then, view the program.

SPEAKER PROFILES

CONFERENCE AGENDA

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Day 1 Agenda

Thursday, July 28 - Registration, Welcome & Check-in

9:00 AM

Registration

9:00 AM - 2:00PM

Registration will be open from 9:00AM to 2:00PM. Please register and receive your event materials prior to going to your room.

2:00PM

Peer-to-Peer Training

2:00PM - 4:00PM

Dr. Ify Osunkwo

4:00PM

Opening Reception

4:00PM - 5:00PM

Opening ceremony

5:00PM

Visual Explorers

5:00PM - 7:00PM

Host: IASCNAPA

9:00PM

Warriors After Dark

9:00PM -

You probably feel like you walked into a group of strangers. Leave this session knowing that you are with your new warrior friends.

Day 2 Agenda

Friday, July 29 - Learning Extravaganza

10:00AM

Plenary

10:00AM - 11:00AM

Daily registration for local Los Angeles based member. Breakfast is for hotel guests (registered attendees) ONLY.

11:00AM

Breakout sessions

11:00AM - 1:00PM

1:00PM

Lunch: Clinical Research Breakthroughs

1:00PM - 2:00PM

2:00PM

Breakout Sessions

2:00PM - 5:00PM

09:00PM

Worriors After Dark

09:00PM -

Day 3 Agenda

Tentative schedule and subject to change

10:00AM

Plenary

10:00AM - 11:00AM

11:00AM

Abstract Oral Presentations

11:00AM - 1:00PM

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1:00AM

Lunch

1:00AM - 2:00PM

2:00PM

Breakout Sessions

2:00PM - 3:00PM

7:00PM

Awards Gala

7:00PM -

Host: SC101

Day 4, July 31 - Last Day

Advocacy Training is optional for those interested in revving up their activism

9:00AM

Prayer Breakfast

9:00AM - 11:00AM

Prayer breakfast, join us to wish everyone safe travels home.

11:00AM

Closing & Business Meetings

11:00AM -

Please connect with your team leader for the room your closed business meeting will be in.

OPEN MEETING: You are invited to join us as we discuss plans for the 2017 & 2018 Sickle Cell Community Educational Symposium.  Vote for your favorite location and make nominations for planning committee co-chairs.  We will also discuss future Sickle Cell Warriors, Inc. community projects and how you can get involved.

12:00AM

Advocacy Training & Certification

12:00AM - 4:00PM

The class will give you the tools you need to be an effective Sickle Cell advocate, find and serve your client population, make an impact in the world, and ignite your passion and inspiration for sickle cell advocacy. The class also provides personalized consultation to develop your advocacy outreach in your area. Graduates of this course are fully equipped to break the silence associated with sickle cell, reduce stigma, share their stories, and start their own  community outreach organization (if they so desire).

We are not victims to be pitied, We are Warriors

JOIN the WARRIOR MOVEMENT

PARTNER ORGANIZATIONS

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  • cscf
  • apex museum
  • 1091 group
  • sickle
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  • cscsupport2
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THANK YOU TO OUR CURRENT AND PREVIOUS SPONSORS!

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  • selexys
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THANK YOU TO OUR PLATINUM, GOLD, AND RECEPTION SPONSORS

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frequently asked questions

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Is there ample parking at the Convention venue?

There is paid parking and valet parking at the hotel. The venue is also close to public transportation.

I’d like to purchase tickets for 20 members, is there bulk pricing?

There is no bulk pricing available, however, if you are a partner of the SCCC, contact them for a coupon discount.

I've been to previous events, is there a discount?

There is no discount of this type available, however if you have any variation of sickle cell disease, you may be eligible for a discount.

Which payment methods do you accept?

We accept cards via Paypal or the payment portal. Visa, Mastercard, Discover, American Express. However, the consumer pays all user-fees.

Can I pay in cash?

You can only pay in cash at the venue during registration. However, please email us to let us know that you plan to attend.

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[caption id="attachment_2885" align="alignright" width="300"] The Gathering last year, a cruise to the Bahamas[/caption] Hey Warrior Family! We hope you are doing well.
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  • Sickle Cell Patient & Family Educational Symposium
    JULY 28-31, 2016
    Co-hosted by Sickle Cell Warriors, Inc., Sickle Cell 101, and IASCANAPA

    A sickle cell conference created for us (warriors, adults, families, teens and kids living with sickle cell disease) by us (the sickle cell community). Join us for two packed days of educational programs focused on living and thriving with sickle cell disease. Leave educated, inspired, renewed, re-energized, and empowered.

    THEME: Spirit Indestructible

  • Hotel Address

    Loews Hollywood Hotel
    One755 North Highland Avenue
    Hollywood, CA 9008

  • Send us an Email

    sicklecellwarrior@gmail.com

  • Take a Look Our Website

    http://www.sicklecellwarriors.com

  • 510-470-0180