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ATLANTA GA ON JULY 12th-16, 2017

 

4th  Annual Sickle Cell Disease Patient and Family Educational Symposium

Seats Are Limited – Register Now!

Register now to reserve your spot. Space is limited and the Symposium is filling up fast. Full Registration includes access to all workshops, panels, presentations and round-tables; one (1) EXPO pass to the exhibit hall; select meals and one (1) ticket to the Bold Lips and Bow Ties Awards Gala and Prom. Scholarships are available for patients and caregivers to reduce the cost of full registration. Tickets to The Playroom sold separately. See you soon!

THE SYMPOSIUM

The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created and hosted by the sickle cell patient and family community. Now in its fourth year, the meeting has grown in size and scope. Each year the meeting is hosted by a partnership of sickle cell community-based organizations, patients and advocates. We are pleased to announce the 2017 symposium hosts are Hope for SCD, Supporters of Families with Sickle Cell and Bold Lips for Sickle Cell. Working in collaboration with the Sickle Cell Champions Association and No Pain in the Playroom, this meeting boasts our largest and most robust agenda to date. This year there will be three tracks aimed towards adults, teens and young adults and children and caregivers. We are also pleased to include sessions designed specifically for male Warriors and caregivers. The agenda is designed by the sickle cell community with topics identified by patients, caregivers and healthcare supporters. This year the program includes topics ranging from “Parenting Issues from Birth to Adult” and “The Science of Sickle Cell” to “Sickle Cell Mental Health” and “Sickle Cell and College Life”. We are excited to host two special events during the Symposium. Grab your tickets to The Playroom on Friday, July 14th and the Bold Lips and Bow Ties Awards Gala and Prom on Saturday, July 15th.

Join us at The Westin Buckhead Atlanta, July 12 – 16th for four days of education, empowerment, encouragement and entertainment. Designed by Warriors for Warriors. Discounts are available for patients, caregivers and students. Limited scholarships are available. Seats are limited. Register today!

THE PLAYROOM AUCTION FUNDRAISER

We are excited to host an online week-long auction ending on Friday, July 14th with The Playroom! Hosted by the Sickle Cell Champions Association and No Pain in the Playroom, in collaboration with Playdate Atlanta, The Playroom is open to the public and is an opportunity for Warriors and Caregivers to raise funds for sickle cell while enjoying an evening of games, music and entertainment.   Visit here for more information.  Sponsorship and Vendor opportunities are available.

Contact Us For More Information

Contact us for more information

BOLD LIPS & BOW TIES AWARDS GALA AND PROM

BOLD LIPS & BOW TIES AWARDS GALA AND PROM
On Saturday, July 15th, the team that created Bold Lips for Sickle Cell will host Bold Lips & Bow Ties Awards Gala and Prom. The Annual Awards Gala is a collaborative effort between the sickle cell patient, caregiver and CBO community to recognize individuals who have made a difference for those living with sickle cell. This elegant event was purposed as the “Oscars” of the sickle cell community. Each year multiple groups, individuals and community-based organizations join forces to present their awards to deserving patients, caregivers, healthcare providers and research scientists in the community. This year the Awards Gala has been organized as a prom. This is an opportunity for those that missed their prom due to illness to enjoy the experience and for others to experience prom all over again. Last year included awards from Sickle Cell 101, Sickle Cell Warriors, Inc. and the Sickle Cell Community Consortium. The Awardees included Martin Center Sickle Cell Initiative, Sickle Cell 101, Dr. Julie Kanter Washko, Dr. Ify Anyaogu Osunkwo, the Sickle Cell Disease Foundation of California, Dr. Charles Jonassaint, Miriam Toure, Dr. Allen Platt, Selexys Pharmaceuticals and Ssebandeke Ashiraf as SC101 International Advocate of the Year.
Often those living with this disease are forced to miss their prom because of illness and fatigue. This is our chance to enjoy prom while honoring champions in the sickle cell community. Sponsorship opportunities and vendor booths available. Contact exhibit@sicklecellconsortium.org for more information.

ABOUT CONVENTION

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Fly in, register, relax with us and get to know your fellow Warrior siblings with icebreakers and evening reception. Early risers are invited to join us each morning for Yoga and morning workout sessions. A special morning workout session has been prepared for children and parents.

Thursday begins at 10 AM with the opening general session followed by a full day of workshops, presentations and panel discussions. We will have three tracks designed for adult warriors, teens and young adults, and children and caregivers. Come back after free time Thursday night for Warriors After Dark, for snacks and men-only, women-only discussions. Friday and Saturday sessions include coping strategies for every aspect of your life, including dealing with work, school, and relationships. We have special programs for teens, parents, couples, and adults living with sickle cell. Our roundtable panels, plenary sessions, and educational lunches all have been developed for sickle cell warriors and caregivers, by sickle cell warriors and caregivers.

Grab your ticket Friday night for a fun, games and entertainment hosted by the Sickle Cell Champions Association and PlayDate Atlanta. Come ready to dance, play, laugh and show the world that sickle cell does not define us. Get ready to bid on dozens of auction items to benefit the partner organizations of the Sickle Cell Community Consortium.

On Saturday evening we will have a Prom themed awards Gala. Join Bold Lips for Sickle Cell and the sickle cell patient/caregiver prom committee for the BOLD LIPS AND BOW TIES Warrior Prom. This will be an elegant celebration for all participants, and an awards banquet that celebrates the nominees of the Sickle Cell Community Service Awards; self-sacrificing people who support us in the fight against sickle cell disease.

Sunday marks the official launch of our Clinical Trials Faith-based Initiative. Join us for a full buffet prayer and praise breakfast, followed by a special session “Meet me at the corner of Faith and Science” where we will discuss the intersection of faith and science and the important roll of the faith-based community in promoting minority participation in research and health education.

Please feel free to share this website as well as the attached flyer with your community and networks. This program was designed by the sickle cell community for the sickle cell community, and is directly focused on supporting warriors (patients), and their families in the fight against sickle cell disease.

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PARTICIPANTS

30

TOPICS

45

SESSIONS

24

SPEAKERS

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PARTICIPATE

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Want to participate? Read on..

There are many ways to participate in the Convention.

REGISTER and join us in dozens of workshops, panels, and round table discussions. Share your experiences and your knowledge with your fellow Warriors.

EXHIBIT with us. This year we are excited to include an exhibition hall at the Convention. We welcome corporate, government, community, non-profit and Warrior exhibitors to rent booth space for the duration of the Convention. 

PRESENT a poster of your research or advocacy work. Submit an abstract of your research or advocacy work through the abstract portal. Bring a poster of your work to the Convention. Select abstracts will be invited to give an oral presentation during the Convention. Click here.

LEARN MORE
Available-Scholarships

Scholarships are available for Warriors and Caregivers.  Scholarships are limited and based on need.

Apply today! 

Sickle Cell Warriors, DON’T MISS THIS AMAZING CONFERENCE!

SPEAKERS

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The 2017 speaker roster is currently being finalized. Check back later for more information and speaker bios.. This program has been lovingly crafted by the sickle cell advocacy community for our patients and families.
The topics were selected after polls and votes were submitted through our various networks.
No matter which program you choose, you will leave feeling educated, empowered, and inspired.

Dealing with sickle cell can often leave you feeling isolated and stressed. We are here to help you know that you aren’t alone on this journey. Check out our amazing speakers and then, view the program.

SPEAKER PROFILES

CONFERENCE AGENDA

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Day 1 Agenda

Wednesday, July 12 - Registration, Welcome & Check-in

10:00 AM

Registration

10:00 AM - 1:00 PM

Registration will be open from 9:00AM to 2:00PM. Please register and receive your event materials prior to going to your room.

2:00PM

Icebreakers

2:00PM -

4:00PM

Opening Reception

4:00PM - 5:00PM

Opening ceremony

Day 2 Agenda

Thursday, July 13 - Learning Extravaganza

6:00AM

Morning Yoga

6:00AM -

Daily registration for local Los Angeles based member. Breakfast is for hotel guests (registered attendees) ONLY.

8:00AM

Breakout sessions

8:00AM -

10:00AM

Plenary: Welcome to the 4th Annual Sickle Cell Disease Patient and Family Educational Symposium

10:00AM -

1:00 PM

Lunch

1:00 PM -

02:00PM

Afternoon Breakouts

02:00PM -

07:00PM

Warriors After Dark

07:00PM -

Day 3 Agenda

Friday, July 14

6:00AM

Yoga/Morning group run/jog/Morning workout

6:00AM -

8:00AM

Breakfast

8:00AM -

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9:00AM

Early Breakouts

9:00AM -

10:00AM

Plenary - General Session

10:00AM -

11:00AM

Research Lightning Rounds: 10 minute presentations/panel by subject for questions (Morning Snack Break)

11:00AM -

2:00 PM

Lunch

2:00 PM -

7:00PM

AUCTION/PLAYDATE

7:00PM -

7 PM:  AUCTION/PLAYDATE – ***Ticketed Event***
Childcare Alternative – Lisa/Vanessa/Velvet
Hospital Childlife Speacialists
Nursing Students

Day 4, agenda

Saturday, July 15

6:00AM

Yoga/Morning group run/jog/Morning workout

6:00AM -

8:00AM

Breakfast

8:00AM -

9:00AM

Early Breakouts

9:00AM -

10:00AM

Plenary - General Session

10:00AM -

11:00AM

Morning Breakouts

11:00AM -

1:00 PM

Lunch

1:00 PM -

2:00PM

Afternoon Breakouts and FREE time

2:00PM -

7:00PM

Awards Gala/Prom

7:00PM -

Day 5 Agenda

Sunday, July 16

8:00AM

Prayer & Praise Breakfast

8:00AM -

Prayer Breakfast – Clinical Trials Initiative/Faith-Based

9:00AM

Empowerment & Encouragement

9:00AM -

Warrior Minister
Warrior Minister
Warrior Minister
Dr. Gayle
Pastor Max
Pastor Betty Phillips
Alberta Cook/ Kenneth Carson

10:00AM

MEET ME AT THE CORNER OF FAITH AND SCIENCE

10:00AM -

Sickle Cell, Clinical  Trials and the Faith-Based Community – Dr. Lakiea J Bailey

11:00AM

Announcements and Vote on 2019 Destination

11:00AM -

2018 Symposium – Memphis, TN
2019 Vote

We are a national collaborative of warriors, caregivers and CBOs

JOIN THE TEAM

PARTNER ORGANIZATIONS

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THANK YOU TO OUR CURRENT AND PREVIOUS SPONSORS!

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THANK YOU TO OUR 2017 Sponsors!

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frequently asked questions

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Is there ample parking at the Convention venue?

There is paid parking and valet parking at the hotel. The venue is also close to public transportation.

I’d like to purchase tickets for 20 members, is there bulk pricing?

Yes, bulk pricing is available.  Contact Jazmine Rivera for more information.

I've been to previous events, is there a discount?

There is no discount of this type available, however if you have any variation of sickle cell disease, you may be eligible for a full or partial scholarship.

Which payment methods do you accept?

We accept cards via Paypal or the payment portal. Visa, Mastercard, Discover, American Express. However, the consumer pays all user-fees.

Can I pay in cash?

You can only pay in cash at the venue during registration. However, please email us to let us know that you plan to attend.

Recent Posts

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Jun 4th

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[caption id="attachment_2885" align="alignright" width="300"] The Gathering last year, a cruise to the Bahamas[/caption] Hey Warrior Family! We hope you are doing well.
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  • Sickle Cell Patient & Family Educational Symposium
    Dates: JULY 13-16, 2017

    Co-hosted by The Supporters of Families with Sickle Cell in Oklahoma, Bold Lips for Sickle Cell, and Hope for SCD.

    A sickle cell conference created for us (warriors, adults, families, teens and kids living with sickle cell disease) by us (the sickle cell community). Join us for two packed days of educational programs focused on living and thriving with sickle cell disease. Leave educated, inspired, renewed, re-energized, and empowered.
    Send us an Email

    For general Questions-
    intern@sicklecellconsortium.org

    For Speakers-
    Kdavis@sicklecellconsortium.org

    For Sponsors/ Exhibitors
    Sponsorship@sicklecellconsortium.org

  • Hotel Address

    The WESTIN - Buckhead Atlanta
    3391 Peachtree Road, N.E., Atlanta, GA, 30326, United States
    www.westinbuckheadatlanta.com

  • Send us an Email

    intern@sicklecellconsortium.org

  • Take a Look Our Website

    http://www.sicklecellconsortium.org

  • 706-619-6029

Our Venue

WESTIN

The WESTIN – Buckhead Atlanta
3391 Peachtree Road, N.E., Atlanta, GA, 30326, United States
www.westinbuckheadatlanta.com

Newly refreshed and situated in the heart of the upscale Buckhead community, this Buckhead hotel is surrounded by the finest shopping and dining experiences in Atlanta. With recently completed renovation of all guest rooms and public spaces, as well as the renowned Atlanta restaurant, The Palm. The hotel is next door to Lenox Square and the Shops Around Lenox and across the street from Phipps Plaza. The 30,000 square feet of flexible meeting and event space provides the perfect backdrop for our Atlanta meeting.

Our rate $129/night

Sickle Cell Annual Patient Symposium (July 10, 2017 – July 17, 2017)

BOOK YOUR ROOM NOW

Guests can access the site to learn more about the event and to book,
modify, or cancel a reservation from May 25, 2017 to July 20, 2017.