MEMPHIS, TN ON JULY 18th-22nd, 2018

 

5th  Annual Sickle Cell Disease Patient and Family Educational Symposium

Seats Are Limited – Registrations Opens TUESDAY, MAY 15TH!

REGISTRATION OPENS ON TUESDAY, MAY 15TH. Register now to reserve your spot. This convention will fill up fast. Remember, this is the only conference in the sickle cell community organized entirely by Warriors and Caregivers for Warriors and Caregivers. We welcome everyone living with sickle cell, warriors, parents, teens, and understanding health care professionals. See you soon!

SICKLE CELL FOUNDATION OF TENNESSEE

The Sickle Cell Foundation of Tennessee (SCFT) is a 501 (C)(3) non-profit organization founded in 2008, by the late Dr. Trevor K. Thompson and Cherry N.Whitehead-Thompson. As an educator (Administrator with Memphis City Schools) and sickle cell disease consumer, Dr. Thompson championed the call for advocacy, educational support and social services for citizens impacted by sickle cell disease in Memphis, across the state of Tennessee, and in the regions of north Mississippi and eastern Arkansas. His efforts have enabled SCFT to provide educational awareness, through direct contact, via television, radio, print, and social media to more than 1,000,000 citizens across the Mid-South area.

MISSION

To provide educational awareness, comprehensive social services, and collective supportive impact to all persons affected by Sickle Cell Disease within our service areas.

VISION

To improve the quality, self-sufficiency, and sustainment of life of all sickle cell consumers to the highest credible level possible.

SICKLE CELL CHAMPIONS ASSOCIATION

The Sickle Cell Champions Association (S.C.C.A.) is a not-for-profit community-based organization (CBO) made up of men and caregivers living with sickle cell disease.  Formed as a partner of the Sickle Cell Community Consortium, we were the founding organization of the Sickle Mens Action Network (Sickle M.A.N.).  Under the leadership of Clayton Andrews, S.C.C.A.  focuses on the empowerment, motivation and overall growth of adolescent males living with sickle cell disease.

Five young men with a similar vision and a common cause came together to create a male mentoring program for children and adolescents with Sickle Cell Disease and Sickle Cell Trait.

The S.C.C.A. came together as a group of advocates who endure the pain and discomfort of living with (SCD).

The S.C.C.A. banded together, as affiliate advocates, to represent a male voice and bring awareness to this disease, in order to inform the patient, family, and community. The members and officers of S.C.C.A. strive for the mentorship and guidance of the youth that have been stricken with this blood disorder. We have designed a positive mentoring program, to guide the youth through their transitioning years into adulthood.

SICKLE CELL COMMUNITY CONSORTIUM

The Sickle Cell Community Consortium is a US-based non-profit formed in 2014 to “harness and amplify the power of the patient voice”. The Consortium is comprised of sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners and medical and research advisers. These stakeholders collectively form the General Assembly of CBOs and Advocates, the decision-making body of the Consortium. The Consortium acts as an organizing entity providing the framework for the stakeholders of the General Assembly to apply a model of Collective Impact to define problems and gaps in the sickle cell community, identify strategies to address those needs and gaps, and determine the CBO, Community, and Corporate partnerships best equipped to implement those strategies to achieve significant and sustainable change.

ABOUT CONVENTION

The Annual Sickle Cell Patient & Family Educational Symposium (the Warriors Convention) is the only national sickle cell convention designed, created and hosted by the sickle cell patient and family community and powered by the Sickle Cell Community Consortium. Now in our fifth year, the meeting has grown in size and scope. Each year the meeting is hosted by a partnership of sickle cell community-based organizations, patients and advocates. We are pleased to announce the 2018 symposium hosts are the Sickle Cell Foundation of Tennessee, the Sickle Cell Champions Association, and Transition with Power.  Working in collaboration with Hope for SCD, this meeting boasts our largest and most robust agenda to date.  This year there will be three tracks aimed towards adults, teens and young adults and children and caregivers. We are also pleased to include sessions designed specifically for Warrior and caregiver men (organized and hosted by the Sickle Mens Action Network (Sickle M.A.N.). The agenda is designed by the sickle cell community with topics identified by patients, caregivers and healthcare supporters. This year the program includes topics ranging from “Parenting Issues from Birth to Adult” and “The Science of Sickle Cell” to “Sickle Cell Mental Health” and “Sickle Cell and College Life”. We are excited to host two special events during the Symposium. Grab your tickets to The Playroom on Friday, July 20th and the Warriors of Wakanda Awards Gala and Prom on Saturday, July 21st.

Fly in, register, relax with us and get to know your fellow Warrior siblings with icebreakers and evening reception. Early risers are invited to join us each morning for Yoga and morning workout sessions. A special morning workout session has been prepared for children and parents.

Registration opens Wednesday, July 18th at 10 AM.  We begin festivities at 4 PM with an opening reception and ice-breakers.  Early risers are invited to join us each morning at 7 AM for morning yoga and workout.  The General Plenary session starts at 10 AM on each day, followed by multi-track breakout sessions, workshops, roundtable discussions and panels.  We are excited to offer lunch each day accompanied by a main general session on a wide variety of topics of interest to the sickle cell warrior community.  Plenty of free-time is dispersed throughout each day to explore all that Memphis has to offer.

Each evening we are excited to offer several special sessions.  Join us on Wednesday night for Paint & Sip (adults) and Arts & Crafts (children)*.  On Thursday we will host Warriors After Dark Men-Only and Warrior after Dark Women-Only (age 17+/15-16 with parent permission).  This session is included in full registration and is divided by gender for adults only.  We will discuss a variety of adult-themed topics that are important to our warrior community.  Join us Friday for The Playroom (adults) and The Playground (children)* and again on Saturday evening for the Warriors of Wakanda Awards Gala/Prom.

Join other Warriors as we learn from and encourage each other on all aspects of Warrior life, including dealing with work, school, and relationships. We have special programs for teens, parents, couples, and adults living with sickle cell. Our roundtable panels, plenary sessions, and educational lunches all have been developed for sickle cell warriors and caregivers, by sickle cell warriors and caregivers.

Please feel free to share this website as well as the attached flyer with your community and networks. This program was designed by the sickle cell community for the sickle cell community and is directly focused on supporting warriors and our families in the fight against sickle cell disease.

*Starred programs are ticketed events.  The Wednesday Paint & Sip and Friday Playroom are not included in the Full Registration.

bigstock-Smiling-African-American-Woman-12042665[1]
slider-1.jpg

Program Overview & Learning Objectives

PROGRAM OVERVIEW:
This is an educational conference planned by and for consumers with sickle cell disease to address issues that are most relevant to consumers. Some of the latest research in sickle cell disease will be discussed as well as management of the most common complications including treatment options; gene therapy, transplant, transfusion, and new therapeutic drugs available (or being researched) for sickle cell disease. Speakers will discuss issues related to stress management, financial management, transition from pediatric to adult care, caregiver respite, rights & responsibilities in the workplace, men only sessions, women-only sessions, and other interesting topics.

TARGET AUDIENCE:
The primary audience is consumers with sickle cell disease, adults and children, their caregivers, and sickle cell advocates.

LEARNING OBJECTIVES:
After completing this course, you should be able to:
Review the most common complications of sickle cell disease
Discuss stress management techniques for sickle cell disease
Discuss chronic transfusion and sickle cell disease
Understand new drug therapies for sickle cell disease!

300

PARTICIPANTS

30

TOPICS

45

SESSIONS

24

SPEAKERS

sickle-cell-main[1]

PARTICIPATE

Want to participate? Read on..

There are many ways to participate in the Convention.

REGISTER and join us in dozens of workshops, panels, and round table discussions. Share your experiences and your knowledge with your fellow Warriors.

EXHIBIT with us. This year we are excited to include an exhibition hall at the Convention. We welcome corporate, government, community, non-profit and Warrior exhibitors to rent booth space for the duration of the Convention. {link to exhibit info}

PRESENT a poster of your research or advocacy work. Submit an abstract of your research or advocacy work through the abstract portal. Bring a poster of your work to the Convention. Select abstracts will be invited to give an oral presentation during the Convention. {link to abstract portal}

LEARN MORE

Sickle Cell Warriors, DON’T MISS THIS AMAZING CONFERENCE!

SPEAKERS

The 2018 speaker roster is currently being finalized. Check back later for more information and speaker bios.. This program has been lovingly crafted by the sickle cell advocacy community for our patients and families.
The topics were selected after polls and votes were submitted through our various networks.
No matter which program you choose, you will leave feeling educated, empowered, and inspired.

Dealing with sickle cell can often leave you feeling isolated and stressed. We are here to help you know that you aren’t alone on this journey. Check out our amazing speakers and then, view the program.

SPEAKER PROFILES

CONFERENCE AGENDA

Day 1 Agenda

Wednesday, July 18 - Registration, Welcome & Check-in

10:00 AM

Registration

10:00 AM - 5:00 PM

Registration will be open from 9:00AM to 6:00PM. Please register and receive your event materials prior to going to your room.

4:00PM

Welcome Reception & Icebreaker

4:00PM - 7:00PM

7:00PM

Paint & Sip

7:00PM - 9:00PM

Must purchase ticket to attend.

Day 2 Agenda

Thursday, July 19 - Learning Extravaganza

7:00AM

Morning Yoga

7:00AM - 8:00AM

8:00AM

Registration Open

8:00AM - 11:00AM

10:00AM

Plenary Session

10:00AM - 11:00AM

11:00AM

Break-out Sessions

11:00AM - 1:00PM

1:00PM

Lunch

1:00PM - 2:00PM

Sponsored

01:00PM

Registration Open

01:00PM - 3:00PM

2:00PM

Break-out session

2:00PM - 4:00PM

7:00PM

Warriors after Dark Men

7:00PM - 10:00PM

7:00PM

Warriors after Dark Men

7:00PM - 10:00PM

Day 3 Agenda

Friday, July 20

7:00AM

Morning Yoga

7:00AM - 8:00AM

8:00AM

Registration Open

8:00AM - 11:00AM

10:00AM

Plenary Sessions

10:00AM - 11:00AM

11:00AM

Break-out Sessions

11:00AM - 1:00PM

1:00PM

Lunch

1:00PM - 2:00PM

Sponsored

1:00PM

Registration Open

1:00PM - 3:00PM

2:00PM

Break-out session

2:00PM - 3:30PM

4:30PM

Zoo

4:30PM - 6:30PM

Children

5:00PM

Tour Civil Rights Museum

5:00PM - 7:00PM

Day 4, agenda

Saturday, July 21

7:00AM

Morning Yoga

7:00AM - 8:00AM

8:00AM

Registration Open

8:00AM - 11:00AM

10:00AM

Plenary Sessions

10:00AM - 11:00AM

11:00AM

Break-out Sesisons

11:00AM - 1:00PM

1:00PM

Lunch

1:00PM - 2:00PM

Sponsored

2:00PM

FREE TIME

2:00PM - 7:00PM

7:00PM

GALA DINNER - WARRIORS IN WAKANDA

7:00PM - 10:00PM

Day 5 Agenda

Sunday, July 22

8:00AM

Registration Open

8:00AM - 11:00AM

10:00AM

BREAKFAST/Plenary Talk

10:00AM - 11:30AM

11:30AM

Closing Ceremony

11:30AM - 12:30PM

11:00AM

Announcements and Vote on 2019 Destination

11:00AM -

2018 Symposium – Memphis, TN
2019 Vote

We are a national collaborative of warriors, caregivers and CBOs

JOIN THE TEAM

PARTNER ORGANIZATIONS

THANK YOU TO OUR CURRENT AND PREVIOUS SPONSORS!

THANK YOU TO OUR 2017 Sponsors!

frequently asked questions

Is there ample parking at the Convention venue?

There is paid parking and valet parking at the hotel. The venue is also close to public transportation.

I’d like to purchase tickets for 20 members, is there bulk pricing?

Yes, bulk pricing is available.  Contact Jazmine Rivera for more information.

I've been to previous events, is there a discount?

There is no discount of this type available, however if you have any variation of sickle cell disease, you may be eligible for a full or partial scholarship.

Which payment methods do you accept?

We accept cards via Paypal or the payment portal. Visa, Mastercard, Discover, American Express. However, the consumer pays all user-fees.

Can I pay in cash?

You can only pay in cash at the venue during registration. However, please email us to let us know that you plan to attend.

Recent Posts

Oct 19th

Atlanta’s Tentative Agenda

Here is a look at the previous agenda from our Atlanta program. Don't worry, we have a full roster of other great
0
May 22nd

Testimonials

Morbi quis turpis semper, dapibus orci nec, varius erat. Nam congue feugiat velit, eu laoreet diam egestas eu. Ut vitae mauris tristique, sagittis erat in, tempor nulla. Praesent consequat elit mi.

0
May 22nd

Dance Party all Saturday Night

It is a long established fact that a reader will be distracted by the readable content of a page when looking at its layout. Contrary to popular belief, Lorem Ipsum is not simply random text.

0
Jun 4th

Registration is now Open

[caption id="attachment_2885" align="alignright" width="300"] The Gathering last year, a cruise to the Bahamas[/caption] Hey Warrior Family! We hope you are doing well.
1
read all posts
  • Sickle Cell Patient & Family Educational Symposium
    Dates: JULY 18-23, 2018

    Co-hosted by The Supporters of Families with Sickle Cell in Oklahoma, Bold Lips for Sickle Cell, and Hope for SCD.

    A sickle cell conference created for us (warriors, adults, families, teens and kids living with sickle cell disease) by us (the sickle cell community). Join us for two packed days of educational programs focused on living and thriving with sickle cell disease. Leave educated, inspired, renewed, re-energized, and empowered.
    Send us an Email

    For general Questions-
    intern@sicklecellconsortium.org

    For Speakers-
    Kdavis@sicklecellconsortium.org

    For Sponsors/ Exhibitors
    Sponsorship@sicklecellconsortium.org

  • Hotel Address

    The Sheraton Downtown Memphis
    250 North Main Street
    Memphis, TN 38103

  • Send us an Email

    intern@sicklecellconsortium.org

  • Take a Look Our Website

    http://www.sicklecellconsortium.org

  • 706-204-9269